La Real Sociedad and Bayer Leverkusen will play a charity match on July 29th at the Reale Arena (6 p.m). In addition to being a demanding and attractive test of the txuri urdin preseason, the game aims to raise funds for the Fundación Columbus in the field of rare diseases.
The money raised will go to a clinical trial for spastic paraplegia 50 (SPG50). SPG50 is a devastating genetic neuromuscular disease that affects a very small number of children. The Foundation, Elpida Therapeutics and Viralgen have joined forces to develop a treatment that is now in clinical trial in the United States and that from January 2024 will start a trial in Osakidetza, in the Pediatrics Service of the San Sebastian University Hospital and in the BioGipuzkoa health research institute.
Children from Spain, Germany and Italy will participate in this clinical trial. The product used in this trial is produced at Viralgen's facilities. In addition to the Fundacion Columbus, the Guipuzcoa Cancer Association will support the event and some of the proceeds will go to support summer camps for children affected by cancer in Guipuzcoa.
A Fila 0 will be set up so that all those who wish can also contribute to the cause. Tickets will be sold through our website and the Foundation Columbus website (fundacioncolumbus.org)